Pacific Cancer Programs

Palliative Care and Cancer Survivorship

As knowledge is fragmented into specialities to focus on improvement, not cost, whether the organization's core competences are fully in line, given market realities. An important ingredient of business process reengineering benchmarking against industry leaders, an essential process, should be a top priority at all times taking full cognizance of organizational learning parameters and principles.

1. General Information

WHO: Definition of Palliative Care: Palliative care is an approach that improves the quality of life of patients and their families facing the problem associated with life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psychosocial and spiritual.

Kokua Mau - Hawai‘i Hospice and Palliative Care Organization: Kōkua Mau is Hawai'i’s hospice and palliative care organization. Kokua Mau is comprised of individual and organizational champions and supporters from hospitals, education, consumers, insurance, long term care and hospices. This State wide non-profit organization strives to improve quality of life for people in Hawai‘i by promoting excellence in hospice, end-of-life care, palliative care and early advance care planning. Pacific CEED in partnership with the Pacific Cancer Research Group at the Cancer Research Center of Hawai’i (CRCH) and the Pacific Cancer Programs have collaborated with Kokua Mau to provide training with Pacific Partners and to develop a USAPI Palliative Care Curriculum.

Patient navigation resources:

Useful online patient navigation resources can be found at the following links:

  • Visit Harold P. Freeman Patient Navigation Institute
  • Patient Navigation was founded by Harold P. Freeman, M.D. in 1990, when he initiated and developed the first Patient Navigation program in Harlem to reduce disparities in access to diagnosis and treatment of cancer, particularly among poor and uninsured people. In 2007, as a direct result of a $2.5M grant received from the Amgen Foundation, the Ralph Lauren Center for Cancer Care and Prevention established the Harold P. Freeman Patient Navigation Institute (HPFPNI) to support patient navigation training to individuals associated with organizations. The Institute opened its doors to address the growth in patient navigation programs, but also to offer standards and best practices that are customizable to meet each program's needs.

  • Visit Patient Naviagtion Training Collaborative
  • The Patient Navigator Training Collaborative provides national leadership for the development, education, standardization and sustainability of the growing patient navigation workforce. Patient navigators across various healthcare settings must possess specific knowledge and skills. Imparting the knowledge and building skills are the foci of the Patient Navigator Training Collaborative. The program offers a full range of patient navigation curricula. We offer different levels of courses for new and experienced patient navigators and supervisors. Course formats include face-to-face, online, eLearning courses, and special-topic webinars. The dedicated team includes content and training experts who are patient navigators and navigator supervisors, educators, nurses, medical experts, licensed clinical social workers, psychologists and evaluators. We engage in continuous quality improvement to assure that the courses are of high quality and relevant to the work of patient navigators. Our program team can also assist your organization. We offer consultation to transform healthcare systems through innovative, evidence-based approaches to deploying patient navigators and improving patient outcomes, satisfaction, and reducing costs.

2. Key Publications

WHO Cancer Publication: Palliative Care: This module explains how to implement effective palliative care for cancer, with a particular focus on community-based care. The WHO has developed a series of six modules that provides practical advice for program managers and policy-makers on how to advocate, plan and implement effective cancer control programs, particularly in low and middle income countries. It focuses on how palliative care is an essential part of cancer control and can be provided relatively simply and inexpensively.

  •  WHO 2007: Cancer Control: Knowledge into Action: Palliative Care (pdf 4.1MB)

Advanced Cancer and Palliative Care Treatment Guidelines: This resource is designed to help patients and physicians understand and respond to the range of medical, psychological, and social issues they may be facing. Provided in this booklet is information on how cancer care decisions are made regarding end of life care by the leading cancer center in the U.S. Included in this booklet is a “decision tree” showing a step-by-step approach for a patient and doctor to determine a treatment approach.

  • National Comprehensive Cancer Network (NCCN) and ACS, 2008, 88 pages (pdf 730KB)

Palliative Care: Supporting Women with Advanced Cancer: This fact sheet produced by the Alliance for Cervical Cancer Prevention (ACCP) contains information regarding pain management, barriers to implementing palliative care, ethical issues, and policy and program implications for providing palliative care to women with advanced cancer. This fact sheet is based on lessons learned in developing countries.

Pain & Cancer: This resource is a Cancer Fact Sheet provided by the Intercultural Cancer Council’s Cancer. The Pain & Cancer Fact Sheet contains information on regarding pain and cancer for medically underserved populations. These Fact Sheets were created because medically underserved populations, such as racial and ethnic minorities, experience disproportionately greater suffering and compromised health from cancer compared to the U.S. population as a whole.

Palliative Care for Women with Cervical Cancer: A Field Manual: This resource is a field manual developed for health care providers such as community nurses and medical doctors who care for women dying of advanced cervical cancer. Specifically it is a field manual to which nurses and medical doctors can refer while providing home-based care.

The IAHPC Manual of Palliative Care: The information contained in this Manual is presented for the purpose of educating health care providers about certain aspects of palliative care. This manual includes the following main topics: Principles and practice of palliative care, ethical issues, pain, symptom control, psychosocial topics, and organizational aspects of palliative care.

  • IAHPC Press, 2nd Edition, 2008, 150 pages (pdf 630kb)

Clinical Guidelines for Palliative Care: These clinical guidelines provide information on key points, assessment, management, palliative tips, and references for 16 palliative symptoms and topics. Included in this resource is a list of prescribed drugs and medications commonly used in palliative and end of life care.

Pain Control - Support for People with Cancer: This booklet shows how to work with doctors, nurses, and others to find the best way to control pain. It discusses causes of pain, medicines, how to talk to doctors, and other topics that may of help. There is a list of resources at the end of the booklet. There is also a page to write down notes and keep track of medicines. It also includes a sample pain control record.

  • National Cancer Institute (NCI), 2008, 52 pages (pdf 2.1mb)

The Solid Facts - Palliative Care: This booklet is part of the WHO Regional Office for Europe’s work to present evidence for health policy- and decision-makers in a clear and understandable form. It explains why health services should provide good quality palliative care for all people facing serious chronic illness. It provides evidence for the effectiveness of palliative care, shows how it can be improved, and explains the need to ensure full access. The booklet also explores the varied cultural and health care contexts in different countries, and reveals how to educate professionals and the public about these issues.

Cancer Control Opportunities in Low- and Middle-Income Countries: This book identifies feasible, affordable steps for low- and middle-income countries and their international partners to begin to reduce the cancer burden for current and future generations. It highlights challenges and identifies recommendations for addressing the cancer burden in these countries. Chapter 7 is dedicated to palliative care.

Achieving Balance in National Opioids Control Policy: Guidelines for Assessment: This document provides 16 guidelines that can be used by governments and health professionals to assess the national opioids control policies and their administration for any country. The results from the assessment helps countries determine if they are equipped to address the provisions, procedures and cooperation necessary to ensure the availability of opioid analgesics.

Ensuring Opioid Availability: Methods and Resources: The pain and palliative care fields are encouraged to learn about government drug control policy and to engage with their governments to examine these policies and their implementation in order to address impediments to patient access to pain management. The Pain & Policy Studies Group (PPSG) has developed methods and resources to assist governments and pain and palliative care groups to examine national policies and make regulatory changes. (From abstract)

  • Joranson DE, Ryan KM.. J Pain Symptom Manage. 2007; 33(5):527-532. 7 pages (pdf 60kb)

Palliative Care and Human Rights: A Resource Guide: This Guide was prepared as a user-friendly, multi-purpose resource that can be used on a regular basis on the job. It is divided into two parts: an introduction to health and human rights in general and a section specifically focused on palliative care and human rights.

  • Open Society Institute and EQUITAS 2007, 70 pages (pdf 600kb)

Cancer Pain Release: Publication of the World Health Organization global communications program to improve cancer and HIV pain control and palliative care. Cancer Pain Release is dedicated to keeping a worldwide and multidisciplinary audience in the health professions and government abreast of relevant information and developments in clinical medicine, education and policy.

3. Other Resources

Pain Relieving Drugs in 12 African PEPFAR Countries: Mapping current providers, identifying current challenges, and enabling expansion of pain control provision in the management of HIV/AIDS. The method is described as: “A cross sectional survey questionnaire was distributed to palliative care sites in 12 countries, and a telephone interview conducted with International Narcotics Control Board (INCB) competent authorities in each. The data were analyzed and integrated to identify potential strategies for opioid expansion.”

  • King's College London, 2007. 48 pages (pdf 290kb)

Southern California Cancer Pain Initiative

Founded in 1993, the Southern California Cancer Pain Initiative (SCCPI) is a nonprofit volunteer interdisciplinary organization made up of physicians, nurses, pharmacists, social workers and many other professionals dedicated to the relief of cancer pain.

“Policies and Practices for Cancer Prevention and Survivorship: Physical Activity” is a sixteen-page guide highlighting:

  • What comprehensive cancer control programs can do - Conduct and analyze data, identify and engage potential partners, update your cancer plan, and measure your effects
  • What we know about physical activity
  • Physical activity among adults, youth, and cancer survivors
  • What strategies work for increasing physical activity
  • Resources to support community strategies
  • Possible partners for comprehensive cancer control programs
  • To access the document, please click>HERE<

The Patient Resource Cancer Guide is a publication that provides a free listing of cancer treatment facilities and cancer-specific patient support groups with their contact information.

  • To visit PRCG's website and access their guides, please click >HERE<

ASCO Survivorship Compendium

The Survivorship Care Compendium has been developed to serve as a repository of tools and resources to enable oncology providers implement or improve survivorship care within their practices. The compendium serves as an accompaniment to the educational opportunities and clinical-guidance ASCO offers on survivorship care. Although American Society of Clinical Oncology (ASCO) endorses the National Coalition for Cancer Survivorship definition of a cancer survivor as starting at the point of diagnosis, the focus of this compendium is on individuals who have completed curative treatment or who have transitioned to maintenance or prophylactic therapy.

  • To visit the Survivorship Compendium on ASCO's website, please click >HERE<
  • ASCO Answers Fact Sheets

    ASCO Answers is a collection of oncologist-approved patient education materials developed by the American Society of Clinical Oncology (ASCO) for people with cancer and their caregivers. This series of fact sheets provides a one-page (front and back) introduction to a specific type of cancer or cancer-related topic. Each PDF document includes an overview of the subject, terms to know, and questions to ask the doctor.

  • To visit the Answers Fact Sheets on ASCO's website, please click >HERE<
  • Resources for Patients

    The best cancer care starts with the best cancer information—patients who are well-informed are their own best advocates and serve as invaluable partners for physicians. Cancer.Net brings ASCO's expertise and resources to people living with cancer and to those who care for and about them, providing timely, comprehensive information to help patients make informed health care decisions.

  • To visit the Resources for Patients on ASCO's website, please click >HERE<
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    Funding Sources: PRCCR: #: 5U58DP000835 | Pacific CEED: #: 5U58DP000976 | RCCC: #: U55/CCU923887 

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