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PALLIATIVE CARE AND CANCER

"In advanced cancer, aggressive anticancer therapy must be coupled with aggressive palliative care to optimize both quantity and quality of life. When further anticancer therapy becomes no longer effective, appropriate, or desired, comprehensive palliative care must be intensified to ensure the relief of suffering for both the patient and the family." said Michael Levy, MD, PhD, chair of the NCCN Palliative Care Clinical Practice Guidelines panel. "At the end of life, satisfactory palliative care provides skilled pain and symptom control, avoids prolongation of dying, promotes a sense of control for the patient, relieves burdens, and strengthens patient and family relationships." (Source: National Comprehensive Cancer Network

Advanced Cancer and Palliative Care Treatment Guidelines
National Comprehensive Cancer Network (NCCN) and ACS, 2008, 88 pages (pdf 723K)
The Advanced Cancer and Palliative Care Treatment Guidelines help patients and physicians understand and respond to the range of medical, psychological, and social issues they may be facing.

• To download the pdf please click here

Palliative Care: Supporting Women with Advanced Cancer
ACCP, 2003, 2 pages (pdf 65K)
Cervical cancer prevention programs in developing countries must be prepared to address the needs of patients with advanced cancer. Ideally, programs should have surgical treatment available for women with early stages of cancer. In those developing countries where women have access to early detection of cervical cancer and adequate treatment options, survival rates can reach levels as high as those in developed countries. In many regions, cervical cancer treatments are not accessible or affordable. Home-based palliative care to relieve pain and suffering may be the only realistic option for these women.

• To download the pdf please click here

Pain & Cancer
Intercultural Cancer Council, 2003. 4 pages, pdf 356K. To download please click here

Palliative Care for Women with Cervical Cancer: A Field Manual
PATH, EngenderHealth, 2003,
This manual was developed for health care providers such as community nurses and medical doctors who care for women who are dying of advanced cervical cancer. The Kenya field manual is designed for visiting nurses or health facility-based nurses and physicians.

• To download the pdf please click here

The IAHPC Manual of Palliative Care
IAHPC Press, 2nd Edition, 2008, 150 pages (pdf 630K)
The International Association for Hospice and Palliative Care (IAHPC) is a not for profit organization committed to the development of palliative care world-wide. The IAHPC Manual of Palliative Care is not intended to be a substitute for any textbook or reference book. Nor do its authors claim that it is exhaustive and comprehensive. It does however contain much of what is necessary for the day-to-day practice of palliative care. The links in the PDF document are "hot" as it was a web site and allow you to quickly get to your topic of interest.

• To download the pdf please click here

Clinical Guidelines for Palliative Care
INCTR, 3rd edition, 2006, 79 pages (pdf 1.3MB)
The International Network For Cancer Treatment and Research (INCTR) established this program with the goal of assisting developing countries to initiate and sustain effective palliative care programs suitable for their countries.
Since 2002, INCTR has been working with the Nepal Network for Cancer Treatment and Research (NNCTR/INCTR), which is INCTR's branch in Nepal, to develop an end-of-life care program suitable for Nepal. Using the model developed for Nepal, this program is being extended to other regions, including South India (in collaboration with the American Cancer Society) and Tanzania.

• To download the pdf please click here

Pain Control - Support For People With Cancer
National Cancer Institute (NCI), 2008, 52 pages (pdf 2.1MB)
A booklet for cancer patients that addresses pain control medicines and methods, as well as the physical and emotional effects of pain.

• To download the pdf please click here

The Solid Facts - Palliative Care
WHO-Euro 2004, 35 pages (pdf 666K)
Palliative care is an important public health issue. It is concerned with the suffering, the dignity, the care needs and the quality of life of people at the end of their lives. It is also concerned with the care and support of their families and friends. This is by and large a neglected topic in Europe, but is one that is relevant to everybody in the Region.

• To download the pdf please click here

Cancer Control Opportunities in Low- and Middle-Income Countries
National Academies Press 2007, 326 pages, PDF online reading only available
Cancer is low or absent on the health agendas of low- and middle-income countries (LMCs) despite the fact that more people die from cancer in these countries than from AIDS and malaria combined. International health organizations, bilateral aid agencies, and major foundations-which are instrumental in setting health priorities-also have largely ignored cancer in these countries.
This book identifies feasible, affordable steps for LMCs and their international partners to begin to reduce the cancer burden for current and future generations. Stemming the growth of cigarette smoking tops the list to prevent cancer and all the other major chronic diseases. Other priorities include infant vaccination against the hepatitis B virus to prevent liver cancers and vaccination to prevent cervical cancer. Developing and increasing capacity for cancer screening and treatment of highly curable cancers (including most childhood malignancies) can be accomplished using "resource-level appropriateness" as a guide. And there are ways to make inexpensive oral morphine available to ease the pain of the many who will still die from cancer.

• To read a pdf file of this book online please click here and go to the "read" section of the website.

Kokua Mau - Hawai‘i Hospice and Palliative Care Organization
Kōkua Mau is the state’s hospice and palliative care organization, and it is comprised of individual and organizational champions and supporters from hospitals, education, consumers, insurance, long term care and hospices. Our statewide non-profit organization strives to improve quality of life for people in Hawai‘i by promoting excellence in hospice, end-of-life care, palliative care and early advance care planning.

WHO Cancer Publication: Palliative care
Palliative care is an essential part of cancer control and can be provided relatively simply and inexpensively. [our PDF link]

• To download the pdf please click here
• To see all WHO cancer publications please click here

Achieving Balance in National Opioids Control Policy: Guidelines for Assessment
WHO 2000, 42 pages (pdf 2.5MB)
The Pain and Policy Studies Group (PPSG) [http://www.painpolicy.wisc.edu/] is pleased to announce the availability of a World Health Organization (WHO) publication aimed at improving availability of opioid analgesics in the world.
This document provides 16 guidelines that can be used by governments and health professionals to assess the national opioids control policies and their administration of any country to determine if they contain the provisions, procedures and cooperation that are necessary to ensure the availability of opioid analgesics. The guidelines are derived from the international principle of "Balance" in drug control policy. This principle, which is carefully and extensively documented in the publication, asserts that governments not only have an obligation to prevent drug abuse, but also to ensure the availability of opioid analgesics for medical purposes, and further, that efforts to prevent drug abuse and diversion must not interfere with the adequate availability of opioid analgesics for patients' pain relief. The importance of cooperation between regulators and health professionals is emphasized.
Since the Guidelines were published in 2000, the PPSG and the WHO have used them to encourage cooperation and evaluation of national policy between health professionals and narcotic regulators at several international regional conferences.

• To download a copy of the WHO guidelines, please click here

• The guidelines are availabele in 16 languages. To check out other languages than English, please click here

Ensuring opioid availability: Methods and resources
Joranson DE, Ryan KM.. J Pain Symptom Manage. 2007; 33(5):527-532. 7 pages (pdf 60K)

• To download the pdf please click here

Palliative Care and Human Rights: A Resource Guide
Open Society Institute and EQUITAS 2007, 70 pages, (pdf 600K)

This Guide was prepared as a user-friendly, multi-purpose resource that can be used on a regular basis on the job. It is divided into two parts: an introduction to health and human rights in general and a section specifically focused on palliative care and human rights.

• To download the pdf please click here

Cancer Pain Release
is the publication of the World Health Organization global communications program to improve cancer and HIV pain control and palliative care. Cancer Pain Release is dedicated to keeping a worldwide and multidisciplinary audience in the health professions and government abreast of relevant information and developments in clinical medicine, education and policy.

Cancer pain, palliative care and the World Health Organization: 2000-2002 priorities

 


 

OTHER RESOURCES

Pain Relieving Drugs in 12 African PEPFAR countires
King's College London, 2007. 48 pages, pdf 284K.
Mapping current providers, identifying current challenges, and enabling expansion of pain control provision in the management of HIV/AIDS. To download please click here

 


 

Quality Assurance & Improvement

The Pacific Island Health Officers Association (PIHOA)
is dedicated to the health and well-being of the Pacific Island populations.

The links and documents on their website have been selected from a very large body of available materials about quality assurance (QA) and accreditation in health care, with the intention of including those that are especially useful for PIHOA members and their associates who are interested in building QA systems which fit with their local needs. The materials have been grouped into several sections.  To get to the PIHOA quality assurance site please click here

 


 

tools and Pacific focus resources

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Principal Investigator: Neal Palafox, MD, MPH:
Program Manager CCC/ Registry: Lee Buenconsejo-Lum, MD 
 Pacific CEED Manager: Karen Heckert, Ph.D., pacificceed@gmail.com
Program Coordinator (Registry): Tricia Eidsmoe, MPA pcregistry@gmail.com
Program Coordinator (CCC): Brian Roberts, MBA pacificcompcancer@gmail.com
 

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