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The Pacific Regional Central Cancer Registry (PRCCR)

Talofa, Hafa Adai, Tirow, Iakwe, Alii, Ran Annim, Len Wo, Kaselehlia, Mogethin, Hello!

The United States Associated Pacific Island Nations (USAPIN) consist of the Territory of Guam, the Territory of American Samoa, the Commonwealth of the Northern Marianas Islands (CNMI), The Republic of the Marshall Islands (RMI), the Republic of Palau, and the Federated States of Micronesia (FSM), including the FSM States of Chuuk, Kosrae, Pohnpei and Yap. 

These island nations have come together to maximize scare resources, leverage support and build capacity in the region in order to develop and maintain the Pacific Regional Central Cancer Registry (PRCCR) in the region. 

The PRCCR will assure that cancer cases are reported and abstracted with precision and accuracy across the region. Below are the goals and objectives that will allow the USAPI to meet the CDC's National Program of Cancer Registries (NPCR) standards.

1. Operationalize the Pacific Regional Central Cancer Registry, eventually to be housed at the University of Guam (UOG) Cancer Research Center, Guam Cancer Registry by December 2011.
   The Hawai‘i Tumor Registry (HTR) will serve as the transitional regional registry while also continuing to help to develop capacity at the Guam Cancer Registry
   
   
2. Increase local (jurisdiction) capacity to contribute good quality information to the regional registry
   a. Partner with Hawai‘i, USAPIN, U.S. National and international resources to create practical, quality-driven educational strategies for health workers who are important to providing information to the Pacific Regional Central Cancer Registry
   
   
3. Develop a database management system in accordance with the NPCR and NAACCR standards, but appropriate to the resource limitations of the region
   With the University of Hawai‘i (UH) Telecommunications and Information Policy group, the UOG and the CDC NPCR, systematically plan and seek resources to improve the IT infrastructure in the jurisdictions so that they can be in compliance with security and data transmission standards
   
   
4. Utilizing existing jurisdiction and regional comprehensive cancer control frameworks, forge stronger collaborations between all potential reporting sources in the region, so that meaningful data can be used for health planning and evaluation to decrease the burden of cancer in the USAPIN.

REsources

• The US Cancer Registry Amendment Act (Public Law 102-515) (pdf 112 K)

• American Samoa Cancer Registry Act (pdf 116 K)

• Guam Cancer Registry Act (pdf 180K)

• Guam Cancer Registry Act Amendement (pdf 920K)

 

• For additional documents about the Pacific Cancer Programs please click here

Pacific Cancer Programs, Principal Investigator, Chair of the Department of Family Medicine & Community Health, UH-JABSOM, Neal Palafox, MD, MPH
Regional Comprehensive Cancer Control (RCCC) and Pacific Regional Central Cancer Registry (PRCCR), Program Manager: Lee Buenconsejo-Lum, MD
Pacific Center of Excellence in the Elimination of Disparities (Pacific CEED), Program Manager, Karen A. Heckert, PhD, MPH, MSW, pacificceed@gmail.com
Pacific Regional Central Cancer Registry, (PRCCR) Program Coordinator, Tricia Torres, MPA: pcregistry@gmail.com
Regional Comprehensive Cancer Control (RCCC), Program Coordinator, Brian Roberts, MBA: pacificcompcancer@gmail.com

Key Partners:
Cancer Information Services-Pacific Region (CIS),
Pacific Islands Health Officers Association (PIHOA)
Hawai‘i Tumor Registry